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International Scientific Meeting for PIK3CA Related Conditions

International Scientific Meeting for PIK3CA Related Conditions

10/28/2021 - 10/29/2021


When: Thursday, October 28 & Friday, October 29, 2021 

Where: Virtual 


The International Scientific Meeting for PIK3CA Related Conditions is hosted and sponsored by CLOVES Syndrome Community, in collaboration with Chairs Dr. Denise Adams of CHOP, Dr. Miikka Vikkula of de Duve Institute and Dr. Jean Zhao of Dana-Farber Cancer Institute. We are hosting this meeting as part of our patient led PIK3CA Related Conditions Research Network development with the Rare As One Network. This is a virtual two day meeting. 

Registration is now open! 

We invite you to attend the first International Scientific Meeting for PIK3CA Related Conditions, where we will focus on the diverse range of phenotypes of the spectrum that share a PIK3CA mutation. 

The goals for this meeting are: 

To bring together the experts in the PIK3CA pathway including clinicians, clinical researchers and basic scientists to allow opportunities to present new information, share data, foster collaboration and encourage networking
To stimulate new ideas
To encourage new researchers to enter the field, to collaborate with others in the field and to collaborate with our patient organizations
To identify the gaps and unmet needs for our heterogenous patient populations

The conditions covered in this meeting include:
CLAPO Syndrome
CLOVES Syndrome
Facial Infiltrating Lipomatosis (FIL)
Fibroadipose Vascular Anomaly (FAVA)
Generalized Lymphatic Anomaly (GLA)
Isolated Lymphatic Malformation
Isolated Venous Malformation
Klippel – Trenaunay Syndrome (KTS)
Hemihyperplasia‐multiple lipomatosis syndrome (HHML)
Megalencephaly-capillary malformation syndrome (M-CM)

This is not a NAVBO meeting, nor is NAVBO associated with this meeting.  We are providing this listing here because we do believe it is of interest to NAVBO members and those in the vascular biology field.

10/28/2021 - 10/29/2021
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